Skip to main content

COVID-19 Advisory: Visitor restrictions are in place for all Phoenix Children’s locations. Masks are required for all visitors and for patients ages 2+. For more information, visit our COVID-19 Resource Center.

Rare Pediatric Movement Disorders

Some disorders are as complex as their names might imply – whether it’s paroxysmal dyskinesias or opsoclonus-myoclonus syndrome. Rare pediatric movement disorders are a group of individually unique and uncommon neurological diseases, many with genetic causes.

Experts have identified many rare movement disorders and define new ones every year. Because these conditions are not widely recognized, they often go undiagnosed and children don’t get the treatment they need.


Rare movement disorders can cause disabling or troubling symptoms such as muscle stiffness, twisting or writhing. Early and accurate diagnosis is important due to advances in our understanding of new or rare diseases. The right treatment can greatly improve a child’s development, health and quality of life.

Barrow Neurological Institute at Phoenix Children’s is home to exceptional doctors and scientists with advanced, fellowship-level specialty training, national networks and academic research expertise. Our teams are skilled in treating the most complex or unusual disorders.

Teams and Teamwork

Experts in rare movement disorders apply multiple, complementary diagnostic and treatment approaches, including leading-edge neuroimaging, electrophysiology, motion analysis and other neurological services and programs. Our neurogenetics clinic offers additional, specialized evaluation and guidance to assist families with these conditions.

The team at Barrow Neurological Institute includes experts who work closely with other specialists to deliver fully integrated care. Your child receives one-on-one attention, from diagnosis through rehabilitative, medical or surgical therapies, and emotional and behavioral support.

At Phoenix Children’s, we offer seamless care as your child grows and develops, offering full-spectrum services for every condition [link to Conditions page in Rare Pediatric Movement Disorders]. We’ll help manage your child’s condition, build strength and new skills, and improve your child’s overall health and well-being.

Research and Resources  

Our leaders stay at the forefront of research in multidisciplinary areas such as genetics, imaging, neuromodulation and outcomes research to evaluate the effectiveness of new therapies. Doctors at Phoenix Children’s Barrow Neurological Institute also train tomorrow’s leaders through our multispecialty pediatric movement disorders fellowship program.

We collaborate with other national groups and academic leaders on scientific research, support and innovation, including clinical trials of movement disorder therapies.

Learn more about our programs and services.


Share this page